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Brampton family raises over $1 million for toddler s gene therapy treatment

A Brampton family has surpassed the $1 million mark in a fundraising effort to pay for a gene therapy for their two-year-old son. The child has Aromatic L-amino…

By the Sauga 960 newsroom · · 1 min read

A Brampton family has surpassed the $1 million mark in a fundraising effort to pay for a gene therapy for their two-year-old son. The child has Aromatic L-amino acid decarboxylase (AADC) deficiency, a rare genetic condition that impacts the brain's ability to produce essential neurotransmitters.

While the therapy is approved in the United States, it is currently considered experimental in Canada.

The parents stated that their application for out-of-country funding from the Ontario Ministry of Health was rejected. The treatment is described by the hospital as a way to address a progressive, life-shortening disorder that can cause severe disability.

The father of the boy, who moved to Canada from India in 2015, expressed gratitude to the local Punjabi community for their support. He noted that navigating the medical system as first-time parents has been a stressful experience.

Funds raised will cover medical assessments, travel, accommodation, transportation, and follow-up care. The family says they are "fighting for Zorawar to have the opportunity to be evaluated for this therapy and receive it if he is eligible."

For more information, people can visit the Chandi family's GoFundMe page.

Source: insauga.com

Written by the Sauga 960 newsroom with AI assistance from public information, and checked against the source before publishing. Spotted an error? Email info@sauga960am.ca.

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